Navigating
Glioblastoma

AND HIGH GRADE GLIOMA

This book is designed to clear the fog of glioblastoma. To help you as the patient and your loved ones understand the diagnosis in plain, comfortable language. And to help you understand the pluses and minuses of the treatment options.

A Must-Read Guide
for you and your
loved ones

“A diagnosis of glioblastoma dramatically impacts a patient and their family, and many treatment decisions need to be made in a short period of time. Dr. Gruber is an expert neu- rosurgeon and he provides patients and families an invaluable roadmap to help them understand and face the challenges of a malignant brain tumor. I highly recommend this book and will be providing it to my patients and their families.”

ANDREW FABIANO, MD, FAANS

Contributing Author, National Standards of Care for Brain Cancer
Professor of Neurosurgery and Oncology - Buffalo, NY

“As a senior executive, I interacted often with neurosurgeon Tom Gruber in executive-level meetings and budget discus- sions to plan for future needs. It never occurred to me that I would become one of his patients in 2015 when I was diagnosed with a brain tumor and underwent brain surgery. Dr. Gruber has carefully explored ways to help us all by developing this brilliant approach to guide patients and their families from diagnosis through every stage of the journey.”

BONNIE SCHROCK, MBA, FACHE

Brain Tumor Patient
Former COO, Baptist Health Paducah - Paducah, KY

About This Book

Glioblastoma. The word is intimidating, scary, and confusing, and it will instantly make you feel helpless. Multiple doctors’ appoint- ments, strange medical terms, difficult decisions, confusing terminology, and perplexing technology all combine to frighten you and make you wonder how you’ll ever navigate this impossible new world and still feel like you’re doing everything possible for your own health, or the health of your loved one. This book is designed to clear the fog around glioblastoma and high-grade glioma. To help you as the patient and your loved ones understand the diagnosis in plain, com- fortable language. To help you understand the pluses and minuses of the treatment options. To help you make sense of all the testing. To help you understand what to expect at important junctions during treatment. To give you the information you need to make crucial decisions about your care. In this book, I use my fifteen-plus years of knowledge, experience, and training as a board-certified neurosurgeon to guide and shepherd patients diagnosed with glioblastoma and high- grade glioma and their loved ones through this difficult diagnosis.

The Authors

Thomas J. Gruber, MD 

Dr. Gruber is a neurosurgeon in Paducah, Kentucky, and is affiliated with Baptist Health Paducah. He received his medical degree from University at Buffalo School of Medicine.

Thomas J. Gruber, MD

Marcia Gruber-Page, RN 

Ms. Gruber-Page is a registered nurse with a diverse clinical and administrative healthcare background. Marcia has three master’s degrees (adult oncology, epidemiology, and leadership) and has been active at the national level in the Oncology Nursing Society and the Society for Gastroenterology Nurses & Associates, Inc.

“To hear that I had brain cancer was like a sucker punch to the stomach. The words brain cancer echoed through my head. Unfortunately, in the meantime, I did the one thing no one should do: research your diagnosis on the internet. No two people are alike; your case will never be the same as anyone else’s. This is your story and only your story to write. His book, Navigating Glioblastoma and High Grade Glioma, is superbly written in that it provides resourceful and practical advice on how to navigate through this journey with an easy-to-read and easy-to-understand guide not only for the patient, but the family as well.”

– Candice Cole - Brain Tumor Patient

“This book is amazing. I can honestly say that so many of the things written about, in layman’s terms, are exactly the things that I have heard asked by patients and explained by the nurses. This is such a scary and anxious time for the patient and caregiver who have so many questions—and when they get home and start trying to remember, they realize they did not absorb everything that the doctor told them. Having the information in this easy to read and understand book would be wonderful to provide to each patient with this diagnosis.”

– Kimberly Sweeney, RN, mba

C h a p t e r  0 1

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